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“Live a healthy life, then die quickly at 90″
100 years ago, chronic illness was rare because the average lifespan in 1900 was just 47 years. Medical science focused on preventing and treating infections, making childbirth safer, and treating...
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‘Healthy Privilege’– when you just can’t imagine being sick
"Healthy privilege allows healthy people to assume that their experience is 'normal', and to be unaware that coping strategies that work for them will not work for someone dealing with illness."
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When we don’t look as sick as we feel
As cancer patient Lisa Bonchek Adams once wrote: "Just because people see me out in public they shouldn’t assume that I’m back to normal or feeling great." Here's how sick people get judged by others...
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When we judge the poor the way we judge the chronically ill
After reading sociologist Dr. Lisa Wade's excellent essay on how we judge those living in poverty, it has occurred to me that there are painfully strong similarities between negative judgements about...
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A letter to my pre-heart attack self
If only I'd known before becoming a heart patient some of the things I've learned since 2008...
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My open letter to “Patients Included” conferences
"Dear medical conference organizers... As a patient, I regret to inform you that I can no longer afford to be 'honoured' by any more medical conference invitations." Or, as one (paid industry employee)...
View ArticleUnseen, unheard: the commonly shared lived experience of patients
"The experience of being unseen and unheard can flatten the most hardy of souls..." Abigail Johnston, a Stage IV Metastatic Breast Cancer patient on "living while dying every day"
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